Myasthenia Gravis

[nimnarb]

Anyone know about this serious and rare neuromuscular and autoimmune disorder, and what treatments, if any, have been successful in containing it?
Thx.

[AsleepInYorkshire]

Anyone know about this serious and rare neuromuscular and autoimmune disorder, and what treatments, if any, have been successful in containing it?
Thx.

I know absolutely nothing, sorry.

NHS - Myasthenia gravis

AiY(D)

[pje16]

I currently have
problems chewing and difficulty swallowing
slurred speech
a weak right arm
but it's not myasthenia gravis
the doctors don't know what is wrong despite a multitude of tests
and these are ongoing
the good news I feel fine

[Arborbridge]

My Mum had it when I was a teenager, though I doubt there's much I can add. The doctor was quite chuffed - he had never seen a case before. There was no treatment then, and I doubt she had the worst form. When she was tired, I remember she "got the flops" as us kids said, and also the worst aspect - terrible head noises. Like furious rushing sounds which would not stop - she seemed to think it worst when it was windy outside, though I think that may have been her imagination.

It was a terribly period for her, although she never was anything like wheelchair bound or totally delibitated, nor did it overwhelm her - she was so brave to put up with it.

Eventually, she did not die of that, but of cancer which spread to the liver at the age of only 72 - younger than I am now.

Arb.