Anyone had an ETV brain operation?
Posted: May 8th, 2021, 9:59 am
Hi,
Bit of a long shot but I'll ask.
Background, Mrs B has had difficulty walking for the last year or so. After 15/20 minutes gets tired, not out of breath, and starts to scuff/shuffle her feet. An MRI showed a cyst/fluid on the brain, which after a second MRI, with no change, is likely/possibly something she may have had since she was very young. The Multidisciplinary Team at the QE Hospital, after ruling out Parkinsons and the like (no other signs or symptoms) they are offering an Endoscopic Third Ventriculostomy (ETV) as the least invasive option. Basically drill a hole in her head to provide a better drainage channel for the fluid. A low risk op, but of course being the head, runs the risk of stroke if a bleed occurs.
Mrs B is having private physio for her mobility. We were hoping that physio would be a better option but her physiotherapist says that what the physio will do is maintain her present mobility but not make a great improvement on its own.
We have spoken to the consultant but are looking for anybody who has had, or knows someone who has had, or knows about this op.
Questions:
1. Was it successful?
2. If so is the difference more or less immediate or does it get better over time?
Obviously this requires serious consideration given that 64 is no age these days to be shuffling around. Hospital will be phoning for a further talk on Friday and if we say yes on Friday Mrs B could have this done within a few weeks. So no waiting for months and months.
Any help or comments would be appreciated.
Ray and Lorraine.
Bit of a long shot but I'll ask.
Background, Mrs B has had difficulty walking for the last year or so. After 15/20 minutes gets tired, not out of breath, and starts to scuff/shuffle her feet. An MRI showed a cyst/fluid on the brain, which after a second MRI, with no change, is likely/possibly something she may have had since she was very young. The Multidisciplinary Team at the QE Hospital, after ruling out Parkinsons and the like (no other signs or symptoms) they are offering an Endoscopic Third Ventriculostomy (ETV) as the least invasive option. Basically drill a hole in her head to provide a better drainage channel for the fluid. A low risk op, but of course being the head, runs the risk of stroke if a bleed occurs.
Mrs B is having private physio for her mobility. We were hoping that physio would be a better option but her physiotherapist says that what the physio will do is maintain her present mobility but not make a great improvement on its own.
We have spoken to the consultant but are looking for anybody who has had, or knows someone who has had, or knows about this op.
Questions:
1. Was it successful?
2. If so is the difference more or less immediate or does it get better over time?
Obviously this requires serious consideration given that 64 is no age these days to be shuffling around. Hospital will be phoning for a further talk on Friday and if we say yes on Friday Mrs B could have this done within a few weeks. So no waiting for months and months.
Any help or comments would be appreciated.
Ray and Lorraine.